Saturday, November 22, 2008


Packages keep arriving. First, the autoject device. Then, a small carrying bag, a cold compress, daily journal, and two magnets (one magnet for me to list the reasons I will take Copaxone, the other to chart the locations of my daily injections). Finally, a large spiral bound patient education booklet and glossy brochures on the benefits of medication. 

It's been just ten days since I have been diagnosed with MS. Although I knew this was a possibility, I was stunned nonetheless. What has been hardest is to reconcile how great I have been feeling with the diagnosis. But, as the neurologist so cogently put it, "It is what it is. And, it's been what it's been."

Seeing my brain was cool, though. The neurologist pulled the brain scan up  on the computer screen. He showed me layer, after layer of my brain from the base of my neck to my crown. I saw the three old lesions, and one, bright, shiny new spot. 

I scheduled my flu and pneumonia shots; I requested the application paperwork for NORD, an organization that helps individuals cover the staggering cost of medication ($2,200/month); I spoke to the Copaxone staff several times; I called the Student Insurance office; I followed up on several referrals; I researched the medication and read up on the side effects. 

I am stilling reeling; I am still trying to get my bearings. 

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